I know I posted last week that Ryan wasn't due for a cardiology appointment for a few weeks, however we ended up going last Friday. When I scheduled the appointment (in Pittsburgh) the scheduler and I had a bit of a debate when Ryan should be seen. Children's in DC wanted him seen one or possibly two weeks from discharge. The lady over the phone refused to fit me in any earlier than three weeks. She finally told me she'd email Ryan's cardiologist in Pittsburgh to see if the appointment should be sooner. Of course she called me back to say he should come down at his one-week discharge date. It was extremely hard not to say, "I told you so." I'm telling you guys now though - I told her so!
I have pictures of Ryan getting all sorts of test. Not sure I've ever shown you his EKG though. He calls them stickers and helps take them all off when we're done. He's such a trooper.
Ryan's satting in the 59-61 range without oxygen so we'll keep him on the 1/2 liter a little longer. He's getting tired of dragging around his nasal cannula, but doesn't complain too much during the day. Night time is a different story. He takes it off and throws it on the floor after I leave the room. I try putting it back on him while he's sleeping but it just ends up on the floor again. For now, I put it on him during the day and let him win the battles each night.
His other vitals look great. He's back to his normal self at home. No coughing. Happy. Sleeping and eating well. All good stuff.
After his doctor appointment we headed to a consignment shop east of the city since we were already half way there anyway. While there we stopped in Regency Square (a Pittsburgh neighborhood... there really isn't a square) at Square Cafe for lunch. The staff was friendly and accommodating. Ryan had a grilled cheese with fries (he made sure he was getting fries!) and I had the pecan-crusted chicken salad. Yum!\
We aren't due back to the cardiologist until late June.













My giant and I met in high school and have been married for over a decade. I cannot imagine living my life with anyone else.
Natalie is the typical first child - she loves to manage everyone including her parents and complete strangers. She collects things - anything really - and enjoys organizing and rearranging the contents of her drawers and shelves on nearly a daily basis. She is extremely sweet, rules-oriented, and loves giving people parting gifts to remember her by.
If anyone was made to be an Egyptian princess, it is our Ainsley. She loves being carried around and rubbed. She is an extremely happy child who seems to be singing 24/7 and will ham it up for a laugh.
Ryan is our miracle baby. We were told at 12 wks. in utero that he would never make it to 20 weeks. He was born with Pentalogy of Cantrell which includes ectopia cordis, omphalocele, herniated diaphragm, sternal cleft, and ventricular septal defect (VSD). Additionally, he has a missing PDA, pulmonary atresia, hypoplastic right heart syndrome (HRHS), and a cor triatriatum membrane in his heart. To read his full story, click on the labels Baby Boy (before birth story) and Ryan (since birth story).



